.
VR
moonkissed's Journal


moonkissed's Journal

THIS JOURNAL IS ON 101 FAVORITE JOURNAL LISTS

Honor: 0    [ Give / Take ]

PROFILE




15 entries this month
 

Meet Stephen Wiltshire

17:31 Apr 16 2011
Times Read: 1,448






Introduction borrowed from:

http://www.stephenwiltshire.co.uk/biography.aspx



Stephen Wiltshire is an artist who draws and paints detailed cityscapes. He has a particular talent for drawing lifelike, accurate representations of cities, sometimes after having only observed them briefly. He was awarded an MBE for services to the art world in 2006. He studied Fine Art at City & Guilds Art College. His work is popular all over the world, and is held in a number of important collections.



Stephen was born in London to West Indian parents on 24th April, 1974. As a child he was mute, and did not relate to other people. Aged three, he was diagnosed as autistic. He had no language and lived entirely in his own world.



At the age of five, Stephen was sent to Queensmill School in London, where it was noticed that the only pastime he enjoyed was drawing. It soon became apparent he communicated with the world through the language of drawing; first animals, then London buses, and finally buildings. These drawings show a masterful perspective, a whimsical line, and reveal a natural innate artistry.



*to read more about Stephen and view more of his drawings please visithis website

COMMENTS

-



 

16:20 Apr 12 2011
Times Read: 1,460


Autism's $100,000 question



One day I noticed my brother Carlo taking hold of his chin in hand hand and the back of his head in the other and turning his head in this way. I asked him what he was doing and his reply...

"My head is not screwed on right"



It was funny but also it is true, the euphemisms that people use to describe an oddity about a person; not wired right, sandwich short of a picnic, not screwed on right. This article is about a treatment for Autism that is very intensive and very expensive. Later on today I will actually look up the information directly related to the therapy and post it. I will also double check to see if I have therapy options posted already and if I do not I will post those too.

What my question is, is in regards to the high cost of treatment and this is with any chronic syndrome or illness, It is expensive to have heart disease, high blood pressure, allergies to gluten and soy or peanut, diabetes and in my opinion it is a racket. With so many people having these conditions; including Autism Spectrum who generally have weaker immune systems and allergies in addition to the Autism, why are costs of treatment so high? Why are therapies; including dietary therapies, so expensive?

Why when there are a growing number of public schools(not growing fast enough but still)beginning to explore additions to education which includes additional classes and therapies for children with Autism is the state paying the $100,000 tab per individual for something that had a less than 50% success rate according to the article. Especially when people are out of work and the moneys need to go to legitimate health care and family support services.

This may seem like I am arguing against my cause but what these people are offering is a potential solution to help rewire the brains of a minority of high functioning Autistics and they are selling it as a cure. It looks to me like little more than scam targeting people who are already in the high risk category for depression, divorce, suicide, bankruptcy.

As I said though, I will be studying it further later on today after I get back from my neighbors house.



As always any feedback or information on this subject is welcome.



Hugs everybody!

COMMENTS

-



 

16:02 Apr 11 2011
Times Read: 1,465


'Eye on the door': Life with autism wandering

from CNN ireport



On a more personal note, When I was a door greeter at Fred Meyer I knew a child like Michael.

I wish I could remember his name or even his mothers and sisters names. This woman had 4 children in the home and was raising them alone. She looked forward to coming into my store because I would leave my door to push one of the carts, help watch her kids and even help her load her groceries. He had to be in a cart seat so she could keep an eye on him although he was getting to big for it. At home he had to wreck everything she tidied, you have heard the term rearranging chairs on a ship that's going down? Imagine spending an hour and a half cleaning your kitchen top to bottom only to have someone compulsively come in and hurl everything on the counters to the floor; within a matter of minutes it looks like you have done nothing.

Her life was a nightmare of working, parenting her daughters and trying to keep him indoors and sedate. It was also a social services and child protection nightmare. Unable to afford 24 hour childcare she did everything legally within her means to keep him inside and safe while she tried to sleep for a few hours

COMMENTS

-



 

15:58 Apr 11 2011
Times Read: 1,467


Spring break is over and the kids are back at school! No one I know has died this week(yet), so back to my subject of choice at the moment. I love seeing the positive Advocacy popping up all over the site. Cancer, MS, Depression; what have you all of these need their day(or month)and all of them are seen by others in order of importance relative to themselves. In example, since no one related to me has died from Cancer I understand it's importance but my priority is Diabetes because I live with a Diabetic; thereby if the two were competing for my attention Diabetes would win unless I had money and time to give to both causes.

I am focussing on Autism because of my youngest brother.

So now our journey continues...


COMMENTS

-



 

13:54 Apr 06 2011
Times Read: 1,483


Yesterday we went to Dollar General for a few groceries because it is close. When I went to pay, I saw they were fundraising for Autism Awareness. They raise money all year round for Make a Wish and various children in the area with Cancer. Here Cancer is like the plague, kids seem to get it like sniffles. Sometimes they get better and sometimes they don't. My kids are aware of at least three children that have died this last year.

I was moved when I saw they had chosen to make Autism a priority this month. We talked about how little is known and understood about it and how little actual publicity and awareness is actually done. People still don't fully grasp that no one knows where it comes from. Was it the food or the air. Parents of Autistic children range from teens to 60's, all ethnic backgrounds, vegan parents, carnivore parents; there is no escape!

The likelihood it could happen that I have a child diagnosed with Autism Spectrum may seem high because of my brother but it may be just as high for someone with no knowledge of a family member with Autism.

This is why we cannot bury our heads in the sand, it does no good to stuff our fingers into our ears(na na na I can't hear you!). It does no good to play hear no evil see no evil.


COMMENTS

-



 

15:20 Apr 05 2011
Times Read: 1,493


Autistic brains "organised differently" say scientists

*reposted from BBC News; article written by Jane Hughes





Autistic brains "organised differently" say scientists

By Jane Hughes

Health correspondent, BBC News



Better understanding of autistic brains



People with autism use their brains differently from other people, which may explain why some have extraordinary abilities to remember and draw objects in detail, according to new research.



University of Montreal scientists say in autistic people, the brain areas that deal with visual information are highly developed.



Other brain areas are less active.



The National Autistic Society says the findings significantly increase understanding of the condition.



The research, published in the journal Human Brain Mapping, pulls together 15 years of data on the way the autistic brain works.



Better at visual tasks



It suggests that the brains of autistic people are organised differently from those of other people; the area at the back of the brain, which processes visual information, is more highly developed.



That leaves less brain capacity in areas which deal with decision-making and planning.

That may be why people with autism can be better than others at carrying out some types of visual tasks.



For example, some are able to draw highly accurate and detailed images from memory.



However, they can find it difficult to interpret things like facial expressions.



The condition varies in severity, with some people functioning well, but others completely unable to take part in normal society.



The researchers believe their findings may lead towards new ways of helping people to live with the condition.



"For example, this may show a means to help people to literacy in a much more natural way than the usual methods of helping autistic people," said Dr Laurent Mottron from the University of Montreal.



"The natural tendency is to think that autism is a form of disorganisation. Here, what we see is that it is a reorganisation of the brain," he said.



Understanding autism



Autism experts regard the research findings as significant.



"This review highlights that autism should not only be seen as a condition with behavioural difficulties, but should also be associated with particular skill," said Dr Christine Ecker from the Institute of Psychiatry at Kings College, London.



"It offers us unique insights into the way people with autism perceive their environment and helps us to understand some of their behaviour."



She said it added to the understanding of autism. "Knowing the strengths and difficulties of someone with autism may help to better understand their needs and help them maximize their potential.



"Carol Povey of the National Autistic Society said: "This study is interesting as it begins to demonstrate why people with autism often show a strong single channel for focus and attention.



"Some adults with autism develop their own ways of coping with this experience, some seek out calm and quiet places, whilst others find creative outlets, like art, can help them both process the information as well as give others an insight into how they see the world.



"The more insight we have into the way autism affects sensory processing, the more people with autism, their families and professionals can develop strategies to make daily life easier."



*this article was brought to me by the mother of an Autistic child*

COMMENTS

-



 

00:45 Apr 05 2011
Times Read: 1,499


Meet Rory...


COMMENTS

-



 

05:12 Apr 04 2011
Times Read: 1,502


In Va. assault case, anxious parents recognize 'dark side of autism'





COMMENTS

-



 

22:32 Apr 03 2011
Times Read: 1,506


Walk for Autism-look for events in and around your area

COMMENTS

-



 

15:15 Apr 03 2011
Times Read: 1,511


What is Autism



I wish I could be on here all day today but unfortunately I am having to get dressed and go out of my house. I hope that people will have a safe and happy rest of the weekend.



I appreciate the continued feedback on what I am attempting to do, the support is wonderful. I have to say that we have known about my brother's Autism for 13 years; I knew that there were walks and events but it wasn't until last year through facebook that I found out there was actually an entire month dedicated to the purpose of informing and educating. So this year I am using my profile for the same purpose. I will talk to people, I will post information, I will do my part to spread awareness but I also need the assistance of those who visit my profile.

If you have a suggestion to offer for improvement of the experience or to add to the informational content message me or post it in comments. Likewise if you are offended by what I am doing, it would be appreciated that you explain why you find it offensive; for me this months theme is about fullness of communication and understanding.





Also if anyone would like they may use the image I am using for this months profile image.



HUGS and KISSES everyone!

COMMENTS

-



 

21:46 Apr 02 2011
Times Read: 1,516


Autism Statistics



Posted from eMedtv



Statistics On Autism: An Overview

Experts estimate that two to six children out of every 1,000 will have autism. Males are four times more likely to have autism than females.



Therefore, it can be summarized that between 1 in 500 (2/1,000) to 1 in 166 children (6/1,000) have autism.



There is not a full population count of all individuals with autism in the United States. However, using the occurrence data stated above, we can estimate that if 4 million children are born in the United States every year, approximately 24,000 of these children will eventually be diagnosed with autism.



Assuming the occurrence rate has been constant over the past two decades, we can estimate that up to 500,000 individuals younger than 21 have autism. However, many of these individuals may not be classified as having autism until school-age or later. Because behaviors related to autism are usually present before the age of 3, it is important to make sure the individuals are being identified and are receiving appropriate intervention services as early as possible.



Autism Statistics Compared to Other Childhood Disabilities

A study conducted by the Centers for Disease Control and Prevention found the rate of autism for children ages 3 to 10 years to be 3.4 per 1,000 children, which is lower than the rate for mental retardation (9.7 per 1,000 children); but higher then the rates for cerebral palsy (2.8 per 1,000 children), hearing loss (1.1 per 1,000 children) and vision impairment (0.9 per 1,000 children) found in the same study.



Approximately 2 percent of children under the age of 18 have a serious developmental disability and these include:



Mental retardation

Cerebral palsy

Hearing loss

Vision impairment.





Of these serious developmental disabilities, mental retardation (or intellectual disability) is the most common. A genetic disorder often associated with having mental retardation (MR) or an intellectual disability (ID) that many people recognize is Down syndrome. Current information indicate that having Down syndrome occurs in 1 out of 800 births and is slightly less common than autism.





Approximately 17 percent of children have some type of developmental disability, including more mild conditions such as speech and language disorders, learning disabilities, and ADHD, which appear to be more common than autism.



While developmental disabilities may affect a child's speech or language, physical growth, psychological growth, self-care, or learning, children's health may also be affected by diseases that impact adults as well. A common childhood disease, juvenile diabetes, is prevalent in approximately one in every 400 to 500 children and adolescents, which is in a similar range of the autism. However, autism is more common than childhood cancer, which has a prevalence rate of 1.5 per 10,000 children (1 in 300 males and 1 in 333 females have a probability of developing cancer by age 20 according to the National Cancer Institute).



Public Education

In 2003 approximately 141,022 children were served under the "Autism" classification for special education services.



Autism was added as a special education exceptionality in 1991 and is now the sixth most commonly classified disability in the United States. The most common disability classifications in 2003 were:



Specific learning disabilities (2,866,908 children served)

Speech or language impairments (1,129,260 children served)

Mental retardation (582,663 children served)

Emotional disturbance (484,479 children served)

Other health impairments, which often includes children diagnosed with ADHD (452,442 children served).



While it is clear that more children are getting special education services for autism than ever before, it is important to remember that this classification was only added in the early 1990s, and the growth of children classified may be in part due to the addition of this as a special education category.



Summary

Although it is clear that more children than ever before are being classified as having autism, it is unclear how much of this increase is due to changes in how we identify and classify autism in people, or whether this is due to a true increase in occurrence. However, using our current standards, the autism spectrum disorders are the second most common serious developmental disability after mental retardation/intellectual impairment, but are still less common than other conditions that affect children's development, such as speech and language impairments, learning disabilities, and ADHD.



The impact of having a developmental disability is immense for the families affected and for the community services that provide intervention and support for these families. It is important that we treat common developmental disabilities as conditions of urgent public health concern, do all we can to identify children's learning needs, and begin intervention as early as possible to enable all children to reach their full potential.

COMMENTS

-



 

18:15 Apr 02 2011
Times Read: 1,530


At the moment I am focusing on profiles of online members. not for rates, I don't care about rates. In order to heighten awareness it is important to me that I am visible to as many people as possible. I have gotten a little bit of feedback on my profile content and so far it is all positive. I welcome any suggestions or contributions to the enhancement of the experience.


COMMENTS

-



Selkie
Selkie
18:23 Apr 02 2011

I think what you're doing is great. So many people don't understand (and I include the so-called experts in that) what Autism or an Autistic Spectrum Disorder is all about.



Thanks and I look forward to reading more :)





moonkissed
moonkissed
19:00 Apr 02 2011

I am glad you are following it Selki. My son and my brother are 1 month apart and when I compare the two of them it is frightening.

I had thought for a long time that it was genetic or environmental or both and some of the newer stuff I am reading points the assumption very likely being correct. If a family has an Autistic child as a genetic relation then the genetic markers are there and it is likely there will be another Auti or and Aspi in the family.

Even though my mother is older and stood more of a chance of having a developmentally disabled child; Autism isn't linked to the age of the parents.

Things could have been the other way around.





 

14:58 Apr 02 2011
Times Read: 1,535


Sherri



*This article is posted on the board for Autism Society of America. I have posted the direct link for the story and related stories, located on the same page.



March 31, 2011

By Sherri





I am the mother of three beautiful children. My twin daughters came into my life through adoption. My son came into my life through birth. My children are precious and have brought me more joy than I could ever imagine. My son is 18 years old. He was diagnosed with early infantile autism, Inattentive and Impulsive ADHD, dysgraphia, and anxiety disorder. He is honest, fair, and intelligent. He also will probably never leave home because he didn’t receive the early intervention that he needed to become successful.



Before my children were born I was working for a Fortune 500 company making a very good wage. I am now working for a grocery store making $7.50 per hour. I am unable to make more than that for several reasons. They all have to do with my son's disability.



I co-founded the Lee's Summit Autism Support Group because I was frustrated and didn't know where to go for help. I met another mother on a website for parents of children with disabilities. We quickly became support for each other and spoke on the telephone frequently. We started our group because we knew that there had to be other families out there that were suffering the same way and needed the same support that we were looking for. I will not begin to describe the trials and tribulations that we have encountered trying to get our support group going, but I can proudly tell you that through persistence and sheer will we have a wonderful group of parents now. This leads to my issue with employment.



I cannot give up my support group, and it takes a huge amount of my time. I am willing to accept that challenge, and will not give it up. I do a lot of the work when my children are in bed.

My son was forced to drop out of high school and because there is such a lack of knowledge about autism, he misses 30 days of school each year. This is because his IEP isn't being implemented and his teachers don't understand that children with autism need to chew. Therefore, he is reprimanded for chewing, or he shuts down and his teacher writes him up. This all leads to him becoming physically ill and having to be picked up from school. Then there are the appointments with doctors to try to find the right medication to address some of his issues. This is no small task and requires diligence and time. I can't work for a company that expects me to be at work every day. I need to be available during school hours. I can only work weekends, evenings, and nights. This has led to me making half of what I made over 20 years ago and missing out on a lot of family time with husband and children. I am fortunate. My husband makes a good living and I can afford to make this sacrifice. For years I was able to stay home, but with the present economy, I have been forced back to work. Some families ’don't have this choice. Some families are made up of single mothers who are in fear of losing their jobs when they are called to school to pick up their children.



I am a mother who felt she knew everything that she needed to know to raise children. The day that my son was born, that all changed. I have become an advocate and a lobbyist. . My son's life depends on it.









COMMENTS

-



 

21:02 Apr 01 2011
Times Read: 1,547


My brother is 15 years old and is Autistic. He was in Costa Rica with our mother last week and one day they were at the beach they spied a nest with three baby toucans; which inspired the question:



Q. What do you call three toucans?



A. A six pack!





HAHAHAHA


COMMENTS

-



Enepsigos
Enepsigos
21:10 Apr 01 2011

It took me a second but then I got it. :D *laughs* That's cute.





moonkissed
moonkissed
21:45 Apr 01 2011

Not bad, it took my daughter nearly a minute.

Everyone around him laughed so hard they scared the toucans away.





TheSYSTEM
TheSYSTEM
15:41 Apr 05 2011

Haha I got that one fast. Funny. :P





moonkissed
moonkissed
15:56 Apr 05 2011

He is a funny kid! I told my mother last night,"Such a Pallay! He just wants to entertain!"





Theban
Theban
12:51 Apr 14 2011

Lol





moonkissed
moonkissed
12:58 Apr 14 2011

People like that one :)





 

16:27 Apr 01 2011
Times Read: 1,556


My youngest brother is an Autistic teen. He was born 1 month after my son and while the two of them walking down the street would turn plenty of female heads; they have a major difference. My son is able to cope with and process the information coming at him from all sides. My son knows that if he sees gum on the sidewalk he should leave it alone and my son understands that he must move in unison with the world even if he is moving in a different direction; He has the understanding that he does affect others and he knows why without it having to be explained.

My brother is Autistic.

By comparison he must be reminded to lower his voice when talking to people or speak loud enough to be heard if he is whispering. It is required in his world to give him a 5 minute warning that dinner will be ready, not so he will be available but so he can start the transition from one thing to another. If that transition has not been processed by the time dinner is on the table then there will be an argument. There could be yelling and overturned furniture because he is not ready to stop one action and start another; and no amount of spanking or punishing will fix it.



Over this month I will be posting articles, video's, personal stories about my brother in this journal section. My other two profiles will be acknowledging Autism Awareness but this is were everything will be posted.



Happy April everybody!


COMMENTS

-



Abstract
Abstract
19:58 Apr 01 2011

I wish there was a like button on this.



I really really do.





moonkissed
moonkissed
20:53 Apr 01 2011

Thank you Abs, I know what you mean.








COMPANY
REQUEST HELP
CONTACT US
SITEMAP
REPORT A BUG
UPDATES
LEGAL
TERMS OF SERVICE
PRIVACY POLICY
DMCA POLICY
REAL VAMPIRES LOVE VAMPIRE RAVE
© 2004 - 2024 Vampire Rave
All Rights Reserved.
Vampire Rave is a member of 
Page generated in 0.0739 seconds.
X
Username:

Password:
I agree to Vampire Rave's Privacy Policy.
I agree to Vampire Rave's Terms of Service.
I agree to Vampire Rave's DMCA Policy.
I agree to Vampire Rave's use of Cookies.
•  SIGN UP •  GET PASSWORD •  GET USERNAME  •
X